Impact of COVID-19 on Domiciliary Care Workers in Wales: The OSCAR Quantitative Study, 2016-2021

DOI

Occupational registration data was linked to anonymised electronic health records maintained by the Secure Anonymised Information Linkage (SAIL) Databank in a privacy-protecting trusted research environment. We examined records for all linked care workers from 1st March 2016 to 30th November 2021.Domiciliary Care Workers (DCWs) are employed in both public and private sectors to support adults at home. The support they provide varies but often includes personal care, which demands close contact between care worker and the person being supported. Since the start of the COVID-19 pandemic, people working across the care sectors in England and Wales have experienced higher rates of death involving COVID-19 infection. Social care workers, in both residential and domiciliary care settings, have been particularly badly affected, with rates of death involving COVID-19 approximately double that for health care workers. We do not fully understand the full impact on domiciliary care worker mortality, how COVID-19 has affected worker health more broadly, and the risk factors which contribute to these. Existing evidence on deaths from the ONS relies on occupational classification. However, for many individuals reported as dying with some COVID-19 involvement, information on occupation is missing (18% and 40% missing for males and females respectively). The impact of COVID-19 on the health of domiciliary care workers (DCWs) is therefore likely to be considerable, including on COVID-19 infection itself, mental health, and respiratory illnesses. We aim to generate rapid high-quality evidence based on the views of care workers and by linking care workers' registration data to routine health data. We can use this information to inform public health interventions for safer working practice and additional support for care workers. Our study will use a combination of research methods. We will use existing administrative data involving carer professional registration records as well as health care records. Our analysis of these data will be guided in part by qualitative interviews that we will conduct with domiciliary care workers in Wales. The interviews will address the experiences of care workers during the course of the pandemic. Registration data for care workers in Wales will be securely transferred from the regulatory body, Social Care Wales (SCW) to the Secured Anonymised Information Linkage (SAIL) Databank at Swansea University. These data will be combined with anonymised health records made available from the SAIL databank. Information which could be used to identify individual care workers will be removed in this process. We expect that this will create a research database of all domiciliary care workers in Wales, approximately 17,000 individuals. From this group we will also identify about 30 care workers to be approached via SCW to take part in a qualitative interview. The interview sample will be chosen so that it includes workers from a variety of backgrounds. In our analysis, we will describe the socio-demographic characteristics of the group of care workers in the research database, for example, their average age. We will establish the number of care workers with both suspected and confirmed COVID-19 infection. Will explore how infection with COVID-19 has impacted on key health outcomes, including whether workers were admitted to hospital or died. We will also explore the health of care workers before and during COVID-19 pandemic. We will use the information gained from interviews with care workers to guide the way we analyse the health records of the care workers. Finally, we will examine how well the results from our analysis of care workers in Wales can be used inform what may be happening for workers in other countries in the UK. To ensure that our findings will be of most use to those working in social care, we will work with an Implementation Reference Group. The group will include key stakeholders such as representatives from regulators from across the UK. Working with this group, we will provide rapid recommendations to drive public health initiatives for care worker safety. This may include changes in working practices and longer-term service planning to support care worker health needs.

The OSCAR study (Outcomes for Social Carers: an Analysis using Routine data) aimed to utilise the registration data collected by Social Care Wales, individually linked to secure anonymised electronic health records via the Secure Anonymised Information Linkage (SAIL) Databank (Swansea University), a privacy-protecting trusted research environment (TRE). These data were combined with EHR data sources within the SAIL Databank. The study population was all registered DCWs resident in Wales on 1st March 2020 who did not subsequently opt-out to their data being linked for research.

Identifier
DOI https://doi.org/10.5255/UKDA-SN-855908
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=cc128bdc52d7253f5a9347041dcd11e304da3eb136a3e9c0956b92e25c4d5168
Provenance
Creator Schoenbuchner, S, Cardiff University; Jones, H, Cardiff University; Cannings-John, R, Cardiff University
Publisher UK Data Service
Publication Year 2022
Funding Reference ESRC
Rights Rebecca Cannings-John, Cardiff University; The Data Collection is available from an external repository. Access is available via Related Resources.
OpenAccess true
Representation
Resource Type Numeric; Text
Discipline Social Sciences
Spatial Coverage Wales; United Kingdom