PROFILES registry: Quality of life prostate cancer 2004

The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. The archive can be found on the following website: http://www.profilesregistry.nl

In 2004 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with prostate cancer. The questionnaire was submitted to 964 patients who were diagnosed with prostate cancer between 1994 and 1998. 780 patients completed the questionnaire.

Questionnaires used: - Fill in date - General Questions - Work - Cancer and Care - Health - Comorbidity - SF36 - QoL / CS - Expanded Prostate Cancer Index Composite (EPIC) - Male Sexuality Questions (custom made questions) - Stickertest

Identifier
DOI https://doi.org/10.17026/dans-2aa-9gjq
PID https://nbn-resolving.org/urn:nbn:nl:ui:13-6v8y-x4
Related Identifier https://www.dataarchive.profilesregistry.nl/study_units/view/19
Metadata Access https://easy.dans.knaw.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=oai:easy.dans.knaw.nl:easy-dataset:64854
Provenance
Creator Poll - Franse, L. van de
Publisher Data Archiving and Networked Services (DANS)
Contributor CentERdata
Publication Year 2016
Rights info:eu-repo/semantics/closedAccess; DANS License; https://dans.knaw.nl/en/about/organisation-and-policy/legal-information/DANSLicence.pdf
OpenAccess false
Representation
Language English
Resource Type Dataset
Format SAV; PDF; SAS
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Psychology; Social Sciences; Social and Behavioural Sciences; Soil Sciences
Spatial Coverage The Netherlands; Limburg; Noord-Brabant