Health-related quality of life in adults with classical infratentorial superficial siderosis

DOI

Dataset underpinning the study on health-related quality of life in adults with classical infratentorial superficial siderosis. The data were collected between April 2020 and July 2021 as part of an online survey, and using the two common health-related self-reported outcome measures on  health-related quality of life: HUI3 and EQ5D. The study findings are reported in:   Health-Related Quality of Life in Adults With Classical Infratentorial Superficial Siderosis A Cross-sectional Study Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou  Neurology Nov 2022, 99 (19) e2201-e2211; DOI: 10.1212/WNL.0000000000201115

Available from: https://n.neurology.org/content/99/19/e2201

To ensure the dataset is anonymised, in view of rarity of the disease, certain data were collapsed into categorical variables.  

Identifier
DOI https://doi.org/10.5522/04/19846924.v1
Related Identifier https://ndownloader.figshare.com/files/38549915
Metadata Access https://api.figshare.com/v2/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=oai:figshare.com:article/19846924
Provenance
Creator Kharytaniuk, Natallia; Mazaheri, Amir Ala; Pavlou, Menelaos; Werring, David; Bamiou, Doris
Publisher University College London UCL
Contributor Figshare
Publication Year 2022
Rights https://creativecommons.org/licenses/by/4.0/
OpenAccess true
Contact researchdatarepository(at)ucl.ac.uk
Representation
Language English
Resource Type Dataset
Discipline Other