Abstract copyright UK Data Service and data collection copyright owner.
In 2003, the offer of screening for foetal abnormality and particularly Down’s syndrome became a routine part of antenatal care in the UK for the first time. The 2003 NICE antenatal care guidelines state that 'all pregnant women should be offered screening for Down’s syndrome with a policy that provides a minimum detection rate of 75% with a false-positive rate no greater than 3% by 2007', indicating a move to first trimester screening technologies which achieve this greater level of accuracy. Thus the findings of this study of the only NHS site in England offering combined first trimester screening in a one-stop clinic setting are of particular relevance at this time and has provided the opportunity to look at the implications of an IHT (Innovative Health Technology) prior to wide-scale implementation in the UK. The study findings raise questions about the implications for non-directiveness and informed decision-making of the resulting routinisation of screening, and the shift from an ‘opt-in’ to an ‘opt-out’ service. The implications of the introduction of a routine offer of screening for Down’s syndrome in the first trimester of pregnancy raises new issues for women and their partners, for the organisation and management of screening and for society. The development of prenatal screening technologies is a contested and politically charged arena with ethical and public policy considerations. In the light of the above concerns, the study aimed to explore: the impact of new screening technologies on the social management of pregnancy, service delivery and professional roles participants’ broader responses to the new reproductive technologies, and views about routinisation of screening perceptions of self, the foetus, and the management of reproductive risk The qualitative aspect of this study has not been deposited along with the quantitative data, as the staff interviewed could be identified as the NHS unit was the only place in the country which conducted this type of work at the time of the study.
Main Topics:
This study contains data from childbearing women over the age of 18 who completed a prenatal and postnatal questionnaire, with additional questions about amniocentesis for those who were offered the test. The data cover: details of pregnancy; information, decisions and facts about screening; having the screening test; scans; feelings and worries pre- and postnatal; views pre- and postnatal; previous pregnancies; demographic information; information about the baby and the birth.
Purposive selection/case studies
Postal survey
