Abstract copyright UK Data Service and data collection copyright owner.
The aims and objectives of this survey were to: Describe the experience of and attitudes towards the care of people with AIDS or related conditions; describe the social context in which requirements of health care are negotiated; look at the continuity of care between hospital and community; describe balance of care between professional and lay carers; describe views and perceptions of care of patients and formal and informal carers; examine process of obtaining care; examine balance of care between hospital and community; look at social consequences of care received.
Main Topics:
Methodological issues in research; care of pwas; needs for health and social care of pwas; receiving a positive HIV antibody test; use of general practitioner services; care from the home support team; role of informal carers; role of the voluntary sector; symptoms of AIDS and their relief.
No sampling (total universe)
Face-to-face interview
Identification of pwas through interviews with professionals based at two hospitals and two wards of the hospital and through home support team (HST). Questionnaire interviews with pwas, and follow-up 6-9 months later. Questionnaire interviews with all formal and informal carers, and follow-up for informal carers if pwa died (all specific patients). Additional general questionnaire for formal carers (informal carers nominated by pwas).
