How can e-infrastructures deal with the sensitive data challenge (Working Paper)

DOI

Sensitive personal data is data “revealing racial or ethnic origin, political opinions, religious beliefs, and (…) data concerning health or sex life”. Therefore, data sharing for research purposes must be opened for human health data to address cross-discipline research and improve the well-being of humans. The EUDAT Sensitive Data Group was created to address the unsatisfactory condition of using sensitive data in data infrastructures, like EUDAT. During the EUDAT User Forum, 26-27 Sept. 2016 in Krakow, Poland, the first meeting of the EUDAT Sensitive Data Working Group took place addressing different requirements and possible solutions for the processing of sensitive data in e-infrastructures. This meeting went beyond the current solutions of EUDAT and to find possibilities for more comprehensive data services and solutions as part of the open data environment of current e-infrastructures. In the Working Paper the first results are shown.

Identifier
DOI https://doi.org/10.23728/b2share.3d1dfb9b889c4022ae7b308df009fcc9
Source https://b2share.eudat.eu/records/3d1dfb9b889c4022ae7b308df009fcc9
Metadata Access https://b2share.eudat.eu/api/oai2d?verb=GetRecord&metadataPrefix=eudatcore&identifier=oai:b2share.eudat.eu:b2rec/3d1dfb9b889c4022ae7b308df009fcc9
Provenance
Creator Kuchinke, Wolfgang; EUDAT Sensitive Data Working Group
Publisher EUDAT B2SHARE
Publication Year 2017
Rights Creative Commons Attribution-NoDerivs (CC-BY-ND); info:eu-repo/semantics/openAccess
OpenAccess true
Contact kuchinke(at)med.uni-duesseldorf.de
Representation
Format pdf
Size 211.9 kB; 1 file
Discipline 5.3.10.2 → Information systems → Health informatics