PROFILES registry: Quality of life non-Hodgkin lymphoma November 2009

DOI

The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge.In 2009 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with non-Hodgkin lymphoma.The questionnaire was submitted to 326 patients who were diagnosed with non-Hodgkin lymphoma between 2007 and 2009. 221 patients completed the questionnaire.Questionnaires used:- General Questions- Work- Lifestyle- Activities- Cancer and Care- Comorbidity- Work- EORTC-QLQ-C30 (version 3)- EORTC-disease specific lymfoom (CLL)(in development)- EQ5D- DS14- B-IPQ- FAS- HADS- EORTC-INFO25 (used to be EORTC-INFO26)- Internet

Questionnaire about quality of life for people who have been diagnosed with non-Hodgkin lymphoma between 2007 and 2009

Date Submitted: 2016-06-06

Identifier
DOI https://doi.org/10.17026/dans-zcu-3uyw
Metadata Access https://lifesciences.datastations.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.17026/dans-zcu-3uyw
Provenance
Creator L. van de Poll - Franse; S. Oerlemans
Publisher DANS Data Station Life Sciences
Contributor N.J.E. Horevoorts; Jonker-Driessen Foundation; Funding agency: NWO; Funding agency: ZonMW
Publication Year 2016
Funding Reference NWO 480-08-009 ; NWO 451-10-041
Rights DANS Licence; info:eu-repo/semantics/closedAccess; https://doi.org/10.17026/fp39-0x58
OpenAccess false
Contact N.J.E. Horevoorts (Tilburg University)
Representation
Resource Type Dataset
Format application/pdf; application/x-spss-syntax; text/plain; application/zip; application/x-stata-13; application/x-spss-por; application/x-spss-sav; application/x-sas-syntax
Size 48773; 624; 767520; 1574; 23114; 2776; 4965; 781; 2238; 238776; 228368; 162788; 3537
Version 2.0
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Medicine; Social Sciences; Social and Behavioural Sciences; Soil Sciences